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The human Rights
Commission is currently drawing up its final draft of Northern Ireland's
Bill of rights. Based on the European Convention's charter of human
rights, it aims to offer protection and equal opportunity for all.
But
a group representing those with mental illness claim some of the most
vulnerable in society are being ignored. RICHARD SHERRIFF reports.
For
most of us, the concept of a bill of rights is abstract to the point
where it has little real significance.
We
have families, jobs, the hole-in-the-wall machine, dispenses cash
when we want it and life, for the most part, proceeds in an orderly
fashion.
Compare
that to be taken from your any hour of the day, sectioned under the
Mental Health Order and confined at someone else's discretion in a
mental institution with no right to redress whatsoever.
When
you're released, experience trying to get back on you feet with inadequate
support with little or no understanding from the community around
you.
This
is the world that John James and his colleagues in the voluntary group
STEER want to end.
They
want five conditions written into the bill of rights without which
people with mental illness will continue to have less rights than
cattle.
If
that sounds melodramatic, the 33 year-old has first hand experience
of a system he says is failing the very people it was set up to help.
He
has suffered from mental illness for seven years. He has been institutionalised
three times and now lives with the illness and the stigma attached
to it.
As
a founder member of STEER (Support, Training, Education, Employment,
Research) he makes no bones of the impact it has had upon him.
'The
main problem is that, because of the stigma attached to mental illness,
we have been quiet for too long."'
"All
we are asking for is the right to be treated as human beings and at
the moment we are being treated worse than cattle. Cattle have far
more rights than people undergoing psychiatric treatment."
"'Ordinary
people' only encounter problems when they are pushed up against the
harsh chain link fence at the edge of the system. Most of the time
they are comfortable somewhere in the middle and it isn't until something
happens that you realise how controlled and limited your rights are
and how fragile they are."
Mental
illness affects one in four people at some time in their lives. That
makes it highly probable that each of us knows someone affected, though,
of course, we are often completely unaware.
But,
while praising the work of individuals and advances made in psychiatric,
including care in the community. Mr James says the system is still
under too much pressure to provide adequate treatment.
"The
hospital system is based on on control and containment. There is too
great a reliance on medication as opposed to counselling and psychotherapy
and once out of hospital there is inadequate support in the community.
"I
know of one man who was given an emergency appointment for counselling.
It wasn't until the following year."
Chief
among STEER's goals is the right to independent advocacy for people
'sectioned' or admitted to hospital without their consent.
"We
feel that, if a person is being sectioned, then they should have the
right to call upon an advocate. Or, if they are not able, then an
advocacy agency can be contacted to represent the person.
"It
is needed because, basically, what we're talking about is abduction.
You are taken against your will and you are effectively locked up
with no freedom of movement."
In
addition, he claims an advocate could also act act for a patient in
relation to medical treatment, much of which Mr James claims is often
used as a matter of expediency as opposed to beneficial purpose.
"There
is an over-reliance on medication because resources are scarce and
there isn't the money for intensive counselling and psychotherapy."
Another
urgent requirement is the right for mentally ill people to be seen
by a psychiatric doctor or nurse as soon as they come into contact
with the authorities.
"Sometimes
mentally ill people are arrested and they may have been taking drink
or drugs. They need psychiatric help right away but we have had incidences
where people have been left for 24, 36 even 48 hours over bank holiday
weekends without any treatment at all.
"Then
there are the what are known as the Friday or Saturday Night Specials.
People who come into hospital with a drink of drugs overdose. They
may get their stomachs pumped and be kept overnight, then they will
sign themselves out the next day. They get no psychiatric treatment.
Our view is that, if there is evidence of mental health difficulties,
then the person should have a right to see a train psychiatric senior
house officer."
Item
four on the wish list is the right to access to medical records because,
even though legislation exists allowing access, experience has shown
it is still difficult for people to do so.
"We
have found that some people with mental health difficulties have been
actively discouraged from trying to get access to their records.
"We
know of people who have made written requests to see their records
and are still waiting after five years. We feel it is a fundamental
right to see what is written about you."
The
final item contained in STEER's response to the commission is the
right to choose treatment in advance of being detained. In simple
terms it would enable a person with a history of mental illness to
discuss their condition in the event of them being admitted to hospital
for treatment.
"At
present you can be given any treatment without your consent from electro-convulsive
therapy to anti-psychotic drugs and in extreme cases psych-surgery.
Some of those have horrific side effects.
"They
basically turn you into a zombie and what we want to see is a situation
where, as in the case of consent in a general hospital, a person has
the opportunity to discuss treatment in advance and say what treatment
they are prepared to receive."
'what
we're talking about is abduction. You are taken against your will
and you are effectively locked up with no freedom of movement'
Containing
the problem instead of alleviating it
John
James was 24 when he arrived from south Wales to study at Magee college,
Londonderry.
Away
from his family, it left him isolated when depression struck.
"I
was two years into my course at Magee when I started to become illl.
I had always considered myself to be happy easy-go-lucky sort of person.
"All
of a sudden, I stopped believing in myself, I found that I couldn't
complete my assignments and I lost all confidence. It seemed like
I was falling apart.
"I
believed I had been given a place at university because I was so worthless
and pathetic that they had given a place out of sympathy."
He
finally saw a student counsellor who sent him to a GP and after medication
failed to help, he was admitted to psychiatric hospital for the first
time.
"I
expected to be treated like a human being. I was naive. I believed
psychiatric hospital was the as a general hospital' that you would
go in, get treated and get out.
"What
I found was a regime of control and containment. The doctors, nurses
and psychiatrists would not talk to you. They had other priorities
and it was very much a case of being left to your own devices."
"There
are still hospitals which are about containment and control rather
than treatment. All they are concerned about is preventing you from
harming yourself or other people."
"I
left hospital with a prescription and an appointment to see a psychiatrist
in three weeks time, that is all the support they give you when you
leave hospital."
"There
is a voluntary system out there, which is basically keeping people
alive."
After
two more periods in hospital John now finds a purpose in his work
for STEER that has helped him regain self-esteem and a sense of his
own worth, but like his fellow volunteers life is unpredictable.
"We
have good days and bad days, good weeks and bad weeks, we watch each
other an you get to know the signs."
"Sometime
you get so frightened and scared about the day ahead that you can't
go out the front door, you feel that people see the badness in you
see that you are worthless."
Simply
being in that situation also brings pressures and disappointments.
"I
take each day as it comes and I do work and strive hard, its my aim
to get back to full-time work, but its been eight years and I'm still
single when I might have expected to be married and have a family."
"I'm
33 years old and still living in a one-bedroom flat."
"What
doesn't help is people's attitudes. You can't see mental illness and
that means that people ten to feel that there is nothing wrong with
you."
"I'm
sitting here in a suit and ostensibly I look absolutely fine. Inside,
I'm struggling, but, because that's inside, they don't see that."
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